30 Things Illness Know

In honor of upcoming “National Invisible Chronic Illness Awareness Week” I’m talking about my invisible illness.

30 Things About My Invisible Illness You May Not Know

1. The illness I live with is: Hypermobility Syndrome, Fibromyalgia, Drug-Induced-Lupus

2. I was diagnosed with it in the year: 2012

3. But I had symptoms since: birth

4. The biggest adjustment I’ve had to make is: never knowing what I can do or not do each day

5. Most people assume: I’m lazy or depressed

6. The hardest part about mornings are: headaches almost every morning

7. My favorite medical TV show is: House

8. A gadget I couldn’t live without is: Birkenstock shoes

9. The hardest part about nights are: insomnia and pain

10. Each day I take _3_ pills & vitamins. (No comments, please)

11. Regarding alternative treatments I: have tried chiropractic for 20 years

12. If I had to choose between an invisible illness or visible I would choose: neither

13. Regarding working and career: I sold my piano and am selling my flute.  I can’t hold down a job, because of migraines.

14. People would be surprised to know: I’m a very competitive person.

15. The hardest thing to accept about my new reality has been: Having to let people help me.

16. Something I never thought I could do with my illness that I did was: lay around all day.

17. The commercials about my illness: Cymbalta commercials make me mad, because they portray that people taking it are all depressed, and that this is causing their pain.

18. Something I really miss doing since I was diagnosed is: Functioning.

19. It was really hard to have to give up: my flute.

30 Things Invisible Illness Know

20. A new hobby I have taken up since my diagnosis is: blogging.

21. If I could have one day of feeling normal again I would: dance a happy dance and go outside!

22. My illness has taught me: never take any thing for granted.

23. Want to know a secret? One thing people say that gets under my skin is: You look so good, you must be feeling better.

24. But I love it when people: believe me when I hurt.

25. My favorite motto, scripture, quote that gets me through tough times is: II Corinthians  12:10  For the sake of Christ, then, I am content with weaknesses, insults, hardships, persecutions, and calamities.  For when I am weak, then I am strong.

26. When someone is diagnosed, I’d like to tell them: take it one day at a time.

27. Something that has surprised me about living with an illness is: finding out many other people who have the same illness online.

28. The nicest thing someone did for me when I wasn’t feeling well was: washing the dishes.

29. I’m involved with Invisible Illness Week because: I have been sick for decades, bu just realized there is a name for my sickness.

30. The fact that you read this list makes me feel: hopeful.

@2013, copyright Lisa Ehrman

30 Things About My Invisible Illness You May Not Know

4 thoughts on “30 Things About My Invisible Illness You May Not Know

  • September 4, 2013 at 4:40 am
    Permalink

    It breaks my heart that you had to sell your piano and flute. If I had a flute, I'd send it to you! Thanks for posting this. I read every fact, and learned a lot. God bless you.

    XOXO,
    Meredith

    Reply
  • September 4, 2013 at 4:44 am
    Permalink

    Oh, Meredith…you're too kind. But, I sold it because it hurts to play it now (hands, shoulders, fingers). I thought about keeping it, but it's not any use to me anymore. Thank you for being so thoughtful 🙂

    Reply
  • September 5, 2013 at 8:12 am
    Permalink

    There are so many of us out here. I use to be a real person and I am now no where near that any more Bless you
    Sussanna

    Reply

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