In honor of upcoming “National Invisible Chronic Illness Awareness Week” I’m talking about my invisible illness.
30 Things About My Invisible Illness You May Not Know
1. The illness I live with is: Hypermobility Syndrome, Fibromyalgia, Drug-Induced-Lupus
2. I was diagnosed with it in the year: 2012
3. But I had symptoms since: birth
4. The biggest adjustment I’ve had to make is: never knowing what I can do or not do each day
5. Most people assume: I’m lazy or depressed
6. The hardest part about mornings are: headaches almost every morning
7. My favorite medical TV show is: House
8. A gadget I couldn’t live without is: Birkenstock shoes
9. The hardest part about nights are: insomnia and pain
10. Each day I take _3_ pills & vitamins. (No comments, please)
11. Regarding alternative treatments I: have tried chiropractic for 20 years
12. If I had to choose between an invisible illness or visible I would choose: neither
13. Regarding working and career: I sold my piano and am selling my flute. I can’t hold down a job, because of migraines.
14. People would be surprised to know: I’m a very competitive person.
15. The hardest thing to accept about my new reality has been: Having to let people help me.
16. Something I never thought I could do with my illness that I did was: lay around all day.
17. The commercials about my illness: Cymbalta commercials make me mad, because they portray that people taking it are all depressed, and that this is causing their pain.
18. Something I really miss doing since I was diagnosed is: Functioning.
19. It was really hard to have to give up: my flute.
20. A new hobby I have taken up since my diagnosis is: blogging.
21. If I could have one day of feeling normal again I would: dance a happy dance and go outside!
22. My illness has taught me: never take any thing for granted.
23. Want to know a secret? One thing people say that gets under my skin is: You look so good, you must be feeling better.
24. But I love it when people: believe me when I hurt.
25. My favorite motto, scripture, quote that gets me through tough times is: II Corinthians 12:10 For the sake of Christ, then, I am content with weaknesses, insults, hardships, persecutions, and calamities. For when I am weak, then I am strong.
26. When someone is diagnosed, I’d like to tell them: take it one day at a time.
27. Something that has surprised me about living with an illness is: finding out many other people who have the same illness online.
28. The nicest thing someone did for me when I wasn’t feeling well was: washing the dishes.
29. I’m involved with Invisible Illness Week because: I have been sick for decades, bu just realized there is a name for my sickness.
30. The fact that you read this list makes me feel: hopeful.
@2013, copyright Lisa Ehrman