Invisible_Illness_Awareness_Week

This is Invisible Illness Awareness Week.  I had intended to post each day this week, but my invisible illness has prevented me from doing so.  I’ve had terrible migraines each day this week, and am trying to follow the doctors plan of taking Imatrex to stop them.  The medicine kicks in after I wait an hour to an hour and a half.  The pain has been horrible!  The side effects are really bad, too.  I usually feel like I’m going to die for a couple of hours, along with tight throat and extreme fatigue.  So, after the migraine stops I need to sleep off the drug.  Ugh…not a fun way to live.  I’ve asked for a preventative, but am keeping track to tell the doc how many times I’m forced to take this rotten medicine.

Invisible_Illness_Awareness_Week

In my earlier post: 30 Things You Don’t Know About My Invisible Illness, you can read a little more about my health problems.  I used the template available to all of us who suffer invisibly to spread awareness.  I don’t write this information to get sympathy or complain, but many people don’t realize that invisible illness is such a huge problem.

Another post provides a VIDEO about What Not To Say To Someone With Invisible Illness.  It’s short, but makes a good point.  People like me with invisible illness don’t want to be sick.  We go to many doctors and try many treatments in order to get well.  My illnesses, like many others’, are chronic.  Lupus, Fibromyalgia, Ehlers Danlos Syndrome, and Chronic Migraines don’t have cures.  I take medicines to make the symptoms better.

Invisible_Illness_Awareness_Week

My desires and plans for each day are bright and hopeful.  I have huge lists of things I want to accomplish.  These are things that are blessings to my family and friends.  I want to live normal days and often feel trapped in a body that fails me on a daily basis.  I look to God for strength and courage.  My family supports me and is very patient and understanding.

Invisible Illness is real: Just because you can’t SEE it……  Please take the awareness and embrace it.  Don’t judge those that you see; they may look great, but may be suffering.  When we have good days, we get out and about and try to enjoy our lives.  Tomorrow we may be in bed, crying in pain.

Invisible_Illness_Awareness_Week

@2013, copyright Lisa Ehrman

Invisible Illness Awareness Week

4 thoughts on “Invisible Illness Awareness Week

  • September 13, 2013 at 3:28 pm
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    So sorry to hear you are in so much pain. I know how you feel a little bit. I have arthritis which has been getting worse over the years. Rain or cold weather are the toughest. Take care of yourself.

    Reply
  • September 13, 2013 at 3:57 pm
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    Arthritis is very painful. I only have very mild osteoarthritis, and feel for you. With winter coming, I'm sure you have some dread. God bless you 🙂

    Reply
  • September 13, 2013 at 9:39 pm
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    Thank you, Jennifer. I really appreciate it 🙂 I hope you have a wonderful weekend, too!

    Reply

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