Chronic Illness Reminders

Having many doctors appointments is part of my life.  When you have multiple chronic illnesses, there are regular appointments.  Blood tests are a normal part of these appointments, as well as other tests and prescriptions are updated.  Some of my appointments serve to remind me of the large number of problems  I have that have no answers and no treatments.

This week I had two appointments that made me examine my progress.  My rheumatologist sees me every six months.  We discuss my symptoms, to see if any new symptoms have appeared or to see if any old symptoms have gotten worse.  Then, blood work is done to check my autoimmune status.  I’ve had positive ANA for years, but no specific autoimmune disease is present.
In the past, I was told that the diagnosis was Drug-induced Lupus.  The doctors don’t seem to do anything with this, because they don’t feel there is any active disease.  My anti-histone antibody and anti-chromatin antibody levels point to this, though.  Every time the tests come back with this, I feel worried for a while.  The doctor tells me that I have an autoimmune disease, but they just don’t know which one.  Then, I just forget about it until the next appointment.  So, I can just be thankful that there are no inflammatory markers and no active disease at this time!
Chronic Illness Reminders
My other appointment at the orthopedic doctor was to get an order for the Physical Therapist.  She wanted this so that the insurance would pay for her to work on my lower back and hip pain.  My hips are out of joint all the time, and I’m in pain constantly.  I’ve become used to this pain, which got worse and worse over my adult life.  I try to walk without a limp because I don’t want people asking about it.  The doctor did x-rays and and took measurements.  He also noticed and told me that my lordosis was severe.  It did look worse than the last time I’d seen it on an x-ray.
Every once in a while, I need to remind myself that even though I have all of these health problems, God still loves me and cares about me.
  • Auto Immune Disease
  • Ehlers Danlos Syndrome – Hypermobility
  • Scoliosis, Kyphosis, Lordosis
  • Osteoarthritis
  • Chronic Migraine w/Aura
  • Mast-Cell Disorder
  • Orthostatic Hypotension
I’m thankful that the physical therapist is working on my unstable shoulders and now wants to work on my hips.  They’ve been unstable for decades and if she can help them I will be thrilled!  Any little improvement is such a blessing.
@2015, copyright Lisa Ehrman
Chronic Illness Reminders

3 thoughts on “Chronic Illness Reminders

  • December 31, 2015 at 5:44 am
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    ? Hi Lisa! I am so sorry to hear about your conditions. Has your medical provider done vitamin deficiency testing?

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  • December 31, 2015 at 4:55 pm
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    Thank you, Dorothy. Yes, they do on a regular basis. I tend to go up and down with my Vitamin D levels. So, I keep taking Vitamin D supplements. I can't get too much sunshine exposure, because of rashes. I also take B vitamins, because with my condition we need more of these.

    Reply
  • January 3, 2016 at 1:27 am
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    It must be tough not knowing what autoimmune disease you have but at least there's no active inflammation. I have an autoimmune disease, Rheumatoid Arthritis. It's no picnic but at least it's under control so no active inflammation. I'm just dealing with joint damage already done. Thanks for sharing with Small Victories Sunday Linkup last week. Pinning to our linkup board and hope you joined us again this weekend.

    Reply

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