If you don’t like venting, you can stop reading now. I just saw another FB post covered in flowers, saying something about chronic pain doesn’t define me. lalalala. The commenters were basically disagreeing (some with their own curses) with this. How can you live with constant pain and it not define you?
I’ve been dealing with this (especially yesterday). My health has grown to be so bad it does define me. I am known for my bad health. No one invites me anywhere because they know I can’t come. No one wants to really be around me because I’m always sick. I am dealing with constant headaches, dizzy spells, nausea and weakness. Now, who is going to want to ask to spend time with that?
It can get depressing and does. The doctors see you for just a minute and play with your medications with no thought for how you feel. They increase drugs and decrease drugs. These drugs have strong side-effects both physically and emotionally. Then, my family and I have to deal with all of it. It is rough! Right now I’m not handling it well, and my pain level is very high.
At the same time, the physical therapist expects me to work out and I’m trying to eat well. I’ve gained 30 pounds, but have no energy to cook. I’m too weak and dizzy to cook. See, I told you this was a vent post! Well, this is for me to maybe feel better. Any of you with Ehlers Danlos and other chronic illnesses will surely understand.
I will probably be going through several months of withdrawal of Cymbalta and maybe Topamax? I don’t really know right now. But, I’m not getting headache relief anymore from it. My ability to think seems to be getting worse. Hubby says that it seems to be getting progressively worse.
I certainly wish that there was better research for the diseases that I have: Ehlers Danlos Syndrome, Mast Cell Disorder, Chronic Migraine, and Auto-immune disorder. I am so glad to have family close to love me and hug me when I cry. Whatever you’re dealing with today, I hope and pray that you have people to love you close by.
“A friend loves at all times” Proverbs 17: 17
@2016, copyright Lisa Ehrman