Life Worth Living Ehlers Danlos

This weekend was wonderful, even though my health was absolutely horrible. I was able to attend a close family wedding, but after the trip to arrive at the wedding, my pain levels soared! Travel always creates intense pain and subluxations. The flare will last quite a while, I’m sure. Trying to shower and attend the wedding festivities took all of my energies and left me in a dysautonomia nightmare. My temperature wouldn’t go back down after my shower, and I was sweating and miserable for hours. When that finally ended, I could enjoy the wedding. I just had to make sure and stay seated, and not walk around or stand.

By the evening, I was in terrible pain. My back muscles felt like they were on fire. Hubby massaged my back for at least an hour, but I still fell asleep in severe pain. It’s still amazing to me how my illness can put me in such a mess. Ehlers Danlos Syndrome is a mean and uncaring disorder. It doesn’t care about your plans. It leaves you wanting to cry and makes you want to give up.

Life Worth Living Ehlers Danlos

Even though the extra events caused me to suffer, I’m so thankful that I was able to attend the wedding. Weddings can be like a mini-family reunion. I was able to see relatives that I hadn’t seen in many years. Although the visit was short, the reminiscing was so much fun. There was such an atmosphere of love and promise that weddings bring, too.

So, no matter how long this pain flare lasts, it is worth it. Experiences in life will always cost me something. As a chronic illness patient, I know it will be pain every time. But, as someone who isn’t willing to give up the experiences that bring joy to life, I’ll try to continue pushing forward. I don’t want to give up the chance to live a real life, not matter how my body feels.

@copyright, Lisa Ehrman

Life Worth Living with Ehlers Danlos

2 thoughts on “Life Worth Living with Ehlers Danlos

  • November 22, 2016 at 10:44 pm
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    I’m glad you were able to enjoy being with family and that you got to enjoy the wedding a bit but I am so sorry to hear that you were in pain for most of it. You certainly have the right attitude though.

    Reply
    • November 23, 2016 at 3:12 am
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      Thank you! It doesn’t do any good to get down about the pain, even though sometimes it does happen. Thanks for the encouragement. I hope that you and yours have a wonderful Thanksgiving 🙂

      Reply

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