Growing up in the ’70’s, I was a huge Carpenters fan. One of my favorite songs was Rainy days and Mondays. Being the melancholy that I am, this song was comforting. Little did I know what the future would hold for me with Ehlers Danlos Syndrome.
Now, rainy days bring migraines and extra joint pain. Ah, youth! I never knew that my mild scoliosis curve was just the first sign of the pain to come. Wearing my Milwaukee Brace didn’t correct the curve in my back. Then, my beginnings of chronic pain began when the brace was removed.
The last few days have been extra dreary, dark and gloomy. Today, I woke up to cold rain, a headache and lots of joint pain. Unfortunately, this is very common for those of us with Ehlers Danlos Syndrome, but that doesn’t make it any easier to deal with.
Because the pain management doctor took me off of Mobic three days ago, I’m really feeling the difference. When the Mobic was added to my medicines, I noticed that this seemed to be the “magic” add-on medicine. Mobic is a muscle-relaxer. I haven’t been given strong pain medicines. Just one little pill in the morning helped to take the edge off of my pain levels.
I didn’t know that the side-effects were such that doctors shouldn’t leave you on this treatment for more than about three months. Staying on it too long could cause kidney damage and heart attacks. For some reason, I had not read this information, and the doctor never mentioned it until now. I’m reminded yet again, to check all of these medicines out for myself, more thoroughly.
Today I’ll deal with extra pain and a headache. I’m sure many of you will also hurt more on these miserable-weather days. What do you do on these days to help your pain? There are many options that I choose to get myself off the couch:
- Hubby does massage on my shoulders, back and neck to help with the knots and pain.
- Heating pads
- Hot shower (this makes my POTS worse)
- Physical therapy exercises
- More medicine
- Tens Unit
- Biofreeze (If your skin isn’t sensitive to it)
- Lidocaine patches or jelly
- Pain Tool
I hope your doctor doesn’t take away your pain medicine. Hoping for sunny days for you and less pain, too.
Disclosure: I’m not a medical expert and this post is not intended for medical advice, only my opinion. If you need medical help, please consult your personal physician. This post may contain affiliate links.
@2016, copyright Lisa Ehrman