I’m starting a new treatment in the morning. I’ve tried prednisone before, after severe poison ivy rashes. Prednisone is the only medicine I’ve ever taken that makes me feel like a healthy, normal human. Yes, I always feel down when the prednisone is discontinued. Doctors have never offered it to me before, because of the side-effects.
Today, my rheumatologist gave me a prescription of low-dose prednisone to see if it would help. Because of my severe fatigue and pain, she said this might help. I’m willing to try almost anything to get to a functional state. I’ve spent much too much time on the couch, and would love to feel more energetic.
I also talked to her about my new symptoms of Reynaud’s Disease. She told me to keep my feet warm, since only my toes are affected. I hate knowing that my blood vessels are now a problem in my feet. Between Ehlers Danlos Syndrome and autoimmune disorder, there are just too many issues to count.
We talked about the severe stabbing pains in my heels. I had this about 5 years ago. It went away after 3 years and now it’s back. The first time I had this, the physical therapist treated me for chronic tendonitis. So, now the doctor believes it’s a tendon problem, caused by Ehlers Danlos Syndrome. This does make sense to me, too.
I always feel more hopeful when I try a new treatment. Most of the treatments have given me little or no help. The prednisone should be interesting, and I look forward to giving it a chance.
@2017, copyright Lisa Ehrman