Christmas may be over, but we’re still celebrating at our house. We had an amazing Christmas Day with two of our three children and daughter-in-love. I didn’t follow my own advice about not-overdoing it. I cooked like a healthy person
Ehlers Danlos Syndrome is a cruel and tricky disorder. Trying to live a normal life is more than difficult; it’s impossible! After feeling determined to fight through a mild headache and dizziness, I spent a few hours shopping. Yesterday, being
This weekend was wonderful, even though my health was absolutely horrible. I was able to attend a close family wedding, but after the trip to arrive at the wedding, my pain levels soared! Travel always creates intense pain and subluxations.
When you have Ehlers Danlos Syndrome, pain flares are just part of the holidays. What is a pain flare? It’s when you have pain that increases temporarily, giving acute pain for a period of time. There may be inflammation or
What a relief! My blood tests came back from the doctor, and I got great news. I don’t have Mastocytosis! My tryptase numbers were well within the normal range. I still have the Mast Cell Disorder diagnosis and will still
Doctors appointments seem to come in clusters, or maybe it’s just that we usually have appointments every six months. This week we’re all going to the dentist and allergy doctor. Our son had a cavity that needed filling, which he