Today is Day 2 of the Diabetes Summit. This wonderful program is a free, online event that you can watch every day. Check out the expert talks on things that pertain to Diabetes, Pre-Diabetes, and strategies to help. If you have friends or relatives that would benefit from these talks, share this post with them. You can learn for free! …
Keep Learning About Pain
No matter how long you’ve dealt with chronic illness, you’ll still be amazed at the new things it brings to your life. Just when you think you have learned about your disease, it presents you a new problem. Having Sjogren’s Syndrome on top of Ehlers Danlos Syndrome has me confused. Some of the symptoms overlap, so I don’t know which …
Two Days of Remedies
In the last two days, I’ve completed three medical appointments. It seems like that they come in bunches. Chronic illness naturally brings a great amount of appointments with doctors, therapists, and even dentists. Yesterday, I experienced the result of having Sjogren’s Syndrome and Ehlers Danlos Syndrome. When you have either of these disorders, teeth suffer. EDS causes teeth to crumble. …
Treatment Time
After such an emotionally trying time with my doctors, I’ve finally received some news today. I call it good news even though it’s not good to be chronically ill. But, it’s good to finally have my diagnosis made official by a rheumatologist for Sjogren’s Syndrome. The doctor’s NP just called to tell me that they received all my lab reports …
April Prompts: Marvelling, Continuing, Splurging, Balancing, and Investing
I’m happy to join A Chronic Voice in her monthly prompts. As chronic-illness bloggers, we value each other in the ways we can learn and grow reading about each others’ experiences. April has been a trying month so far, but I look forward to better days. Marvelling: I do truly marvel at the unbelievable roadblocks that stop people with chronic …
Doctors: I’ve Had It
I’ve had it! Doctors! My initial skin biopsy showed that there was a likely diagnosis of Cutaneous T-Cell Lymphoma. When the final call came from the dermatologist today, he said that it was possible, but not a definite diagnosis. What does that mean? He said that the biopsy showed a suspicion of CTCL. What? Give me a break! The dermatologist …
Life Is For The Living
When you live with chronic illnesses, you live with pain, severe fatigue, and a host of other symptoms. Some days are better and some worse. Some people have good days, but I no longer do. This can bring a person to feel very discouraged. For the lucky ones, who are receiving treatment, their “normal” days may be good enough for …
He Is Risen
1 On the first day of the week, very early in the morning, the women took the spices they had prepared and went to the tomb. 2 They found the stone rolled away from the tomb, 3 but when they entered, they did not find the body of the Lord Jesus. 4 While they were wondering about this, suddenly two men in clothes …
Rheumatologists, Rashes, and Relief
Another day, another doctor’s appointment. Actually, I was very happy to go to this appointment. I was referred by my new rheumatologist to dermatology. I’ve wanted to get to the bottom of my rash problem for 7 years! Over the last 7 years, I have been to the dermatologist twice. One doctor thought the rash looked like a lupus rash. …
Purple Day for Epilepsy 2018
Wow! We’ve been celebrating Purple Day for Epilepsy for many years now. What is Purple Day? It’s a day of awareness for Epilepsy. You may know a little about Epilepsy, but there are probably many things that you don’t know. Did you know that there are about 50 million people in the world with Epilepsy? Did you know that there …