Chronic Illness, Ehlers Danlos Syndrome

Ehlers Danlos Syndrome Awareness Month 2018

I’ve been writing about EDS Awareness Month for quite a few years.  Even though my great readers have heard about this, most people haven’t.  Many doctors are also unaware or are poorly educated about it.  Because diagnosing it and treating it are such a problem, it’s important to keep awareness movements active. Ehlers Danlos Syndrome is a genetic condition that …

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Chronic Illness, Contentment, Ehlers Danlos Syndrome, Sjogerns Syndrome, Sleep Apnea

Finding Joy In This Journey

Whew!  What a week!  This week was a busy time for appointments.  I had physical therapy twice, a mammogram, gynecologist, and allergy specialist appointments.  I’ve learned, yet again, that too much activity equals severe consequences. Wednesday at PT, the therapist increased my exercises too much and I came home to crash afterwards.  Thursday was the day of the medical appointments.  …

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