Invisible Illness Awareness Week

This is Invisible Illness Awareness Week.  I had intended to post each day this week, but my invisible illness has prevented me from doing so.  I’ve had terrible migraines each day this week, and am trying to follow the doctors plan of taking Imatrex to stop them.  The medicine kicks in after I wait an hour to an hour and a half.  The pain has been horrible!  The side effects are really bad, too.  I usually feel like I’m going to die for a couple of hours, along with tight throat and extreme fatigue.  So, after the migraine stops I need to sleep off the drug.  Ugh…not a fun way to live.  I’ve asked for a preventative, but am keeping track to tell the doc how many times I’m forced to take this rotten medicine.

In my earlier post: 30 Things You Don’t Know About My Invisible Illness, you can read a little more about my health problems.  I used the template available to all of us who suffer invisibly to spread awareness.  I don’t write this information to get sympathy or complain, but many people don’t realize that invisible illness is such a huge problem.  

Another post provides a VIDEO about What Not To Say To Someone With Invisible Illness.  It’s short, but makes a good point.  People like me with invisible illness don’t want to be sick.  We go to many doctors and try many treatments in order to get well.  My illnesses, like many others’, are chronic.  Lupus, Fibromyalgia, Ehlers Danlos Syndrome, and Chronic Migraines don’t have cures.  I take medicines to make the symptoms better. 

My desires and plans for each day are bright and hopeful.  I have huge lists of things I want to accomplish.  These are things that are blessings to my family and friends.  I want to live normal days and often feel trapped in a body that fails me on a daily basis.  I look to God for strength and courage.  My family supports me and is very patient and understanding. 

Invisible Illness is real: Just because you can’t SEE it……  Please take the awareness and embrace it.  Don’t judge those that you see; they may look great, but may be suffering.  When we have good days, we get out and about and try to enjoy our lives.  Tomorrow we may be in bed, crying in pain.

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