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    Will You Wear Red?

    1 in 3….that’s a third of our mothers and sisters who die from heart disease. Heart disease is the number 1 killer of women. That’s why I wear red today. February 1, 2019, is Wear Red and Give Day. We wear red to spread awareness of heart disease and stroke. 80% of cardiac events can be prevented, so it’s important to tell women how. With an average of 1 person dying every 40 seconds from heart disease, we need to do better. How many people do you know with heart disease? I know plenty, and many in my own family and family tree. I don’t want to be included, but…

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    Good Test Results

    My two doctor’s appointments are done for the week and I feel a sense of relief. Yesterday was my appointment with the general practitioner. Today I spent my afternoon getting an ECHO. My GP appointment consisted of talking through my medication list and my upcoming tests. Because my new insurance doesn’t pay for many of my prescriptions, I had to explain that to her. This helped her to see why she now was having to do physician authorizations for some of my medications. Then, she made sure my vaccinations and other tests were scheduled. The only new one she scheduled for me was a Bone Density test in April. As…

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    5 Resources for Cheaper Medications

    Out of the 13 medicines that are prescribed for my family, 5 of them are not covered under our new insurance. When the new year began, I was initially happy that our new insurance covered my doctors and had a lower premium. We knew that the lower premium would be balanced out by the higher co-pays for some specialists. But, we never expected to have the prescription benefits be so poor. The last two days have been a depressing scramble to find ways to get my medicine without going bankrupt. These aren’t unnecessary medicines, either. They’re medicines that treat Sjogren’s Syndrome, Mast Cell Disorder, Epilepsy, Ehlers Danlos Syndrome, Small Fiber…

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    I Need My Meds

    When I ran out of my muscle relaxer medicine on Friday night, I had already placed the online refill order. I wasn’t really worried about picking it up on Saturday morning, because there were two refills remaining. Simple, right? The online order wasn’t confirmed and then the problems started. The pharmacy tech made incorrect assumptions and caused a lot of trouble. Next, she contacted the doctors and told them they must contact her with a new prescription. Because I had been on vacation, I had to get medicine refills out of state. Using the same pharmacy in a different state was supposed to be easy. The result this time was…

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    Chronic Illness Is No Fairyland

    My nerves were a little obvious as I boarded the train. It was my first time traveling alone, without having the privacy of a sleeping car. The day was going to be a tough one. It was going to be a day that would take a ton of physical stamina and all my ability to fake “feeling good”. Finding my seat on the dark train wasn’t hard, because there were plenty of empty seats, so I got two to myself. I was so relieved that I wouldn’t have to talk to a stranger. I only had one hour to sit on the train in this very early trip. Why on…

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    Serving A Chronic Illness Meal

    It’s been difficult to write the last few days. After taking down the tree and decorations, my body completely crashed! I thought that doing much of the work while seated would make it less stressful for my body, but my body proved me to be wrong….again. As the severe pain and horrible fatigue took my body and threw it in a ditch, all I could do is rest. I rested and rested, until I was able to start thinking again. Then, I began to read more about my exhaustion and looked into anything at all that might help. Although I’ve accepted my chronic life, I won’t stop trying to function.…