• Chronic Illness

    EDS: The Gift That Keeps On Giving

    When I was first diagnosed with Ehlers Danlos Syndrome, there was a great sense of relief. I had been feeling so bad for so long, and now there was a name for this illness. Finding the name for my illness meant that the doctor would give me a treatment and then I could get better. Right? Next, I found out that there is no cure or treatment for EDS. Doctors only treat the symptoms. And, they send you from one specialist to another. Then, the medical system gives you their treatment that works on “normal” people with that symptom. Many of these treatments don’t work the same way or at…

  • Chronic Illness

    Celebrating Today’s Report

    This morning I went to an appointment that I dreaded but also wanted to be done with. Because my CT scan had shown a mass on my right breast, the next step was a mammogram and sonogram. I had a month between the CT scan and today, which gave me plenty of time to worry. In my mind, cancer was the probable result. It’s something that I always felt would be in my future. In a sick kind of way, I had accepted that. But, today was not my day to get a cancer diagnosis. Today was a happier day! I’m so thankful to God that my mass was a…

  • Chronic Illness

    Huge Pain, Little Work

    My third day home after a quick trip to visit family is challenging. Saying “challenging” is just a polite way of saying that I can’t stand the pain. Riding in the car for over 1400 miles in less than a week’s time causes swelling and severe pain. Having to go up and down a huge staircase many times each day just makes my pain level increase. Normally after a trip, I rest for about three days before I do anything. After this trip, we have to get on a packing schedule to move. So, as soon as we arrived there was nothing but work. I’m going room by room and…

  • Chronic Illness

    Prayers for Rain

    Failing, Succeeding, Pausing, Deciding, and Thriving are five words that we’ve heard and spoken of often. Each of these words should immediately bring to mind a recent or memorable event. These are March’s prompts from A Chronic Voice. I’m happy to again write some thoughts that come to mind concerning my life of chronic illness. Although my goal is to live each day just as I would apart from being sick, chronic illness often prevents me from reaching that goal. And, some days my illnesses are all I can think of. Failing As a young person, failing usually meant a poor grade in math class or not winning a desired…

  • Chronic Illness

    When I Am Weak

    After my awful experience the other day, I’m trying to get back to my normal. Unfortunately, I’m not close to that. My pain levels are terrible and there is nothing getting done. It’s not that I’m feeling sorry for myself, but I’m just numb. Thankfully, I’ve been alone for a few days. I’m not able to talk to anyone so it’s good that no one is here. It’s bad when you don’t even want to cuddle with your sweet dog. Every time there is a new diagnosis I go through a time of grieving. And, we all know the worst stage….anger. The last few years, almost every time I go…