This has been a week of worrying. My dad has covid and pneumonia. He has been in and out of the hospital. He doesn’t want to stay and leaves as soon as he feels better. But, then he gets so bad that he has to go back. It’s been very stressful, because I’m just hoping that he’ll recover.
Being far away from elderly parents is hard. And, when you add covid into the mix, it’s really impossible. It’s also just hard trying to deal with all of my chronic illnesses with all of this extra worry and stress.
My overall pain has been a little bit lower, and I’m thankful for any help that I can get. I still have daily pain that keeps me down. Being able to do the dishes or clean up a little makes me have more pain. It’s all a matter of pacing, and you know I’m not good at that.
But, because I have the rest of my life to get better at pacing, I just keep trying to improve. Pacing is the answer to preventing serious stabbing pain. After the dishes, I must use my massage tool. It feels so good behind my back or neck.
I saw my doctor yesterday and we talked about all my new bumps and worries. I had almost forgotten about how he gave me Lidocaine injections during my last visit. It was exciting to get more injections in my shoulder/neck area. There were about 10 injections and I looked forward to a lot of pain relief.
I felt a little bit of relief immediately after the injections. But, when I got home, I was very tired from the appointment and my pain was bad. Throughout the evening, I felt pain relief in the area of the injections. But, lower in the back and hip I was hurting a lot. Late in the evening I gave in and took Advil. At least, I was able to sleep well.
It’s weird how a treatment might feel helpful one time and not really do much the second time. Living with Ehlers Danlos Syndrome is such a roller coaster. We don’t have the same symptoms every day and our pain can be all over the place.
I continue to have slipping around of my disks on a regular basis. Sometimes they only shift when I’m stretching the spine, but often they just randomly shift for no apparent reason. Over time, I worry what will happen as this continues to happen.
When there is no acute problem or new scary symptom, I’m just thankful. I’m thankful I didn’t catch covid, so far. We’ll just keep quarantining and praying. I hope and pray that you are well.
@2020, copyright Lisa Ehrman