A typical day with chronic illness is not typical. I never know what to expect. The only thing I can count on is something bad. I can always count on pain, nausea, and fatigue. But, the surprises vary from day to day.
Today was my third appointment for phototherapy. When I started having stomach cramps I knew that it was probably an allergic reaction. Hubby and I prayed and I took a benadryl. There were two hours until I needed to hit the road for our 40 minute drive.
I was so nauseated! It was a minute by minute fret; should I call to cancel or try to go. At the last minute I decided to chance it. We actually made it with three minutes to spare. I had to rush up to the check-in desk at the hospital, but I made it, huffing and puffing.
My treatment increased in time to 43 seconds. I think I might be getting used to the heat in there. I was so tired when I got home. I showered and collapsed into the recliner. I started chilling and felt like I did when I was younger and would come in after a long day in the sun.
My skin is slightly pink but not burned at all. It’s just kind of weird how I feel after phototherapy treatments. My joints are really bothering me, with pain in my feet, hands, and shoulders. I’m so relieved to have the weekend off! No treatments and no trips. Hopefully after so many exhausting days of trips and treatments I can sleep late and rest.
Typical days of living with multiple chronic illnesses…..there’s no such thing. I never know what will hit me next. On the drive I was talking with hubby about how bizarre it is to be me. If I didn’t know it was true I would never believe that one person could have so many disorders and diseases.
Even though trying to live my best life keeps me busy with treatments, appointments, and all the other things I try to do to feel better, I know that these things aren’t the most important thing. I know that the one who holds me together and strengthens me to live another day is the most important.
God is my all in all. Part of my challenge in this life is to be content, no matter what my circumstances are at the moment. I can only hope to be content if my focus is on Him. Being thankful for the good moments and blessings is necessary for contentment. But, that doesn’t stop me from praying and hoping for better health.
So, my typical day is complicated and stressful, but also beautiful!
@2021, copyright Lisa Ehrman
Disclaimer: I’m not a medical expert. This post contains only my opinions and is not meant to be taken as medical advice. If you have a medical concern, please consult your personal physician.