My new pain doctor shared the results of my MRI with me today. He’s one of those doctors that barely spends any time in the room with me. He basically said that I had pinched nerves leading to my legs. Then he and I discussed my options for treatment.
Some of the treatment options included: Injections, pain medicine, and spinal stimulator. During the last visit he seemed to think I was a great candidate for the spinal stimulator. Injections are bad because I already have osteoporosis and he said that these can cause or worsen osteoporosis. The spinal stimulator sounded like a great thing to try.
I had a question about the stimulator and where the incision might be. When I told the doctor about my pre-diagnosis Cutaneous T-Cell Lymphoma on my back he wanted to see it. He reacted very strongly when he told me that he couldn’t do that unless all the mycosis fungoides were cleared up. The mycosis fungoides is the dark patches that are on my lower back and a few on my stomach. These are this rare lymphoma that usually stays on the skin.
The doctor didn’t want to put a needle or make an incision, because he said that the needle could push the cells inside my body. So, there goes another treatment that I’m not going to be able to use. I was so very disappointed. He told me to get with an oncologist to get on top of this problem. He said it’s very dangerous.
My dermatologist certainly didn’t seem worried about it. Maybe I should talk with all of my doctors about this and see what I should be doing. The simple treatment of steroid cream every day for 2 weeks, then off for 2 weeks is the cycle of treatment I was told to use.
The pain doctor said that since I was already on Gabapentin (for nerve pain), I should now just double the dose. He said I was on a low dose and the higher dose should really help with nerve pain from the pinched nerves. The doctor also said I should take Extra-Strength Tylenol three times each day. He said to take it daily even if I wasn’t having a lot of pain. He said that it builds up in my system and will help more for this type of pain, if I take it this way.
So, tomorrow this will be my new regimen…..more pills! I have to laugh, because my body is so. falling. apart. Between my Ehlers Danlos pain, my pinched nerve pain, my fibromyalgia pain, and Sjogren’s pain, what does it matter that I’m doubling Gabapentin and adding enough Tylenol to kill my liver?
Well, the first appointment in this week is done. Nothing horrible happened. I actually received a treatment that may just be effective. And, he’ll follow up with me in three months. I can be thankful for all of that.
@2021, copyright Lisa Ehrman
Disclaimer: I’m not a medical expert. This post contains my experiences and opinions, and is not meant to be taken as medical advice. If you have a medical concern, please consult your personal physician.