Spinal Muscular Atrophy Awareness Month


“Spinal muscular atrophy (SMA) is disease that robs people of physical strength by affecting the motor nerve cells in the spinal cord, and impacting their ability to walk, eat, and breathe.

August is SMA Awareness Month, and so I wanted to learn and share about this disease.

You can take part in SMA Awareness Month activities all month long! In fact, we are asking the community to “rise to the challenge” every day with our 31-day SMA Awareness Month Challenge! Each Sunday starting August 1, we will share a week’s worth of ways for you and your loved ones to spread awareness of SMA and strengthen your bond with the SMA community. You don’t have to do them all, but rather choose the things that best fit your schedule and interests.

Below you will find additional ways to participate in SMA Awareness Month, as well as links to assets and resources that might get you inspired. The key is to raise awareness and share your SMA pride all month long!” (https://www.curesma.org/sma-awareness-month/)

This disease is rare and an inherited neuromuscular disorder. 95% of the cases are given names of 0, 1, 2, 3, and 4. 4 is the mildest form and 0 is the most severe. Symptoms of this disease are:

  • Respiratory weakness
  • Problems swallowing and chewing
  • Lack of motor function
  • Inability to walk
  • Mild muscle weakness

One in every 54 people in the United States is a carrier of this disease. It’s the number one cause of infant mortality. It could be beneficial to be screened to see if one is a carrier.

#CureSMA and #SMAAwarenessMonth 

Resources:

https://www.mysmateam.com/resources/sma-awareness-month-how-to-participate

https://www.genpathdiagnostics.com/sma-awareness-month-and-the-importance-of-carrier-screening/

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