Today I began taking phototherapy treatments again. After hubby had to reschedule one of his online appointments, he drove the 45 minutes to get me to the hospital. I really hated having to start doing this again. The treatments aren’t painful, but the long trip and going three times each week is hard.
Traveling there three times each week makes me more tired. Riding in the car and walking a long way inside the hospital is tiring. Something about stripping off all my clothes and stepping inside a phototherapy booth is depressing. Of course, it means that I’m trying to fight off Cutaneous T-Cell Lymphoma.
When my CTCL skin problems got worse a few months ago, I called the dermatologist. She said that I needed to start the treatments again and she will see me in a month or two.
Tomorrow is my Axillary Ultrasound. Since my rheumatologist noticed that my underarm lymph nodes were swollen, she ordered an ultrasound. This is really scary and I dread it. I’m praying that it isn’t signs of lymphoma or another cancer. I guess I’ll find out soon if this will lead to more invasive tests.
I’m nervous and it has caused me to have excessive itching and allergic reactions. This usually happens when I’m emotionally distraught. So, the Benadryl will be keeping me drowsy until who knows when. The last time this got started I couldn’t stop the cycle of pills and had to have a dose pack of Prednisone. I hope I don’t have to do this again.
Chronic illness has given me a life of constant appointments and apprehension about what will be found at these appointments. But, this is a part of my life. Whatever happens, I know that God will be with me and strengthen me emotionally and mentally.
@2021, copyright Lisa Ehrman
Disclaimer: I’m not a medical expert. This post contains my experiences and opinions and is not meant to be taken as medical advice. If you have a medical concern, please consult your personal physician.