Chronic Illness, Contentment, Sjogerns Syndrome

Surviving The Battle Within

I woke up knowing that this day was all about survival.  My pounding head led me to check the weather forecast.  I was right, 100% chance of severe thunderstorms. Yes, I’m surviving the battle within.  I’m not talking about a mental or emotional battle.  I’m talking about the battle that my body has against itself.  My body attacks itself every …

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Chronic Illness, Contentment, Ehlers Danlos Syndrome, Sjogerns Syndrome

Rest And Recovery

What is rest?  The Merriam-Webster definition of rest states, “sleep, repose…a state of minimal functional and metabolic activities”.  “Rest” is discussed in poetry, books, and the Bible.  When you have chronic illness, rest has a specific meaning. I just returned from a second trip (within one month).  I didn’t rest enough after the first trip and that made the second …

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Chronic Illness, Contentment, Ehlers Danlos Syndrome, Sjogerns Syndrome, Sleep Apnea

Finding Joy In This Journey

Whew!  What a week!  This week was a busy time for appointments.  I had physical therapy twice, a mammogram, gynecologist, and allergy specialist appointments.  I’ve learned, yet again, that too much activity equals severe consequences. Wednesday at PT, the therapist increased my exercises too much and I came home to crash afterwards.  Thursday was the day of the medical appointments.  …

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Chronic Illness, Sjogerns Syndrome

Sjogren’s Syndrome Awareness Month

April is Sjogren’s Syndrome Awareness Month.  Sjogrens is pronounced Sho – Grins and is a common autoimmune disease.  It may occur frequently, but many people have never heard of it. There are about 4 million people in the US with Sjogrens.  It can be difficult to diagnose, because it presents differently in people.  The symptoms most-often associated with Sjogrens is …

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