Chronic Illness

More Waiting and Learning

As I continue to wait for a Rheumatology appointment, there are other health issues that need attention.  I have a new official diagnosis and saw another specialist this week. I’ve received an official diagnosis of Severe Sleep Apnea.  Now, I’m waiting for the Sleep Disorder Clinic to schedule me for an appointment.  More waiting!  This will be a local appointment, …

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Chronic Illness

January is Thyroid Awareness Month

January is Thyroid Awareness Month.  The thyroid is very important and we must all be aware of potential problems that could arise with our thyroid.  The American Thyroid Association is the world’s leading professional association in this field. Here are some facts from the American Thyroid Association: “Prevalence and Impact of Thyroid Disease More than 12 percent of the U.S. …

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Chronic Illness, Sjogerns Syndrome

Advocacy for Rheumatological Diseases

I’m waiting.  Waiting is the norm for people with chronic illness.  We wait for diagnosis, appointments, referrals, medications to work, and much more.  After being diagnosed with Sjogren’s Syndrome, dismissed by my 5-year Rheumatology Nurse Practitioner, and now waiting for an appointment with a new Rheumatologist,  all I do is wait. I’ve been waiting since 2000 (and before) for help …

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Chronic Illness, Contentment, Ehlers Danlos Syndrome, Sjogerns Syndrome

How to Face Challenges in 2018

Challenges: facing them and conquering them are two different things.  I’m looking to 2018 with challenges ahead.  The difficulties that I’m speaking of are almost all health-related.  When we go from one year to the next, we tend to evaluate our past and dream about the future possibilities. I always hope to look at the New Year with a positive …

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Chronic Illness, Ehlers Danlos Syndrome, Sjogerns Syndrome

First Do No Harm

Living with many Chronic Illnesses can be so frustrating!  When you’ve put yourself through numerous tests and the inconvenience, cost, and pain that goes with testing, you expect that things will now improve.  But, when some people in the medical field are worthless, your life becomes a nightmare. After receiving my definitive diagnosis of Sjogren’s Syndrome, my worst nightmare began.  …

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Chronic Illness, Contentment, Ehlers Danlos Syndrome

A Diagnosis of Sjogren’s Syndrome

I finally have some results of testing done this month and last.  I haven’t heard from all the doctors, but one test result is now ready.  I do have Sjogren’s Syndrome.  My lip biopsy results were positive for Sjogren’s, so now I will be seeing the rheumatologist. The list of results that I’m negative for: Diabetes, Cancer, Muscle diseases, and …

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