Chronic Illness, Contentment, Sjogerns Syndrome

Surviving The Battle Within

I woke up knowing that this day was all about survival.  My pounding head led me to check the weather forecast.  I was right, 100% chance of severe thunderstorms. Yes, I’m surviving the battle within.  I’m not talking about a mental or emotional battle.  I’m talking about the battle that my body has against itself.  My body attacks itself every …

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Chronic Illness, Contentment

How To Be A Prepared Patient

Tomorrow I’m heading to a long-awaited  appointment.  This specialist should be able to tell me if I have Cutaneous T-Cell Lymphoma or not.  After many disappointing appointments, I’m trying to prepare myself. Because this doctor is a nationally-recognized specialist in diagnosing this disease, I do have hope that she’ll give me a definite answer.  Isn’t that what we all want …

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Chronic Illness, Contentment

Mathematical Prompts

July brings another Chronic Voice prompt, and another opportunity to dig deeper into thoughts that bounce around in my head. Adding – It seems like all I do lately is subtract.  My medical bills have us so worried, because they’re piling up.  We subtract more and more money from hubby’s retirement.  Adding to this worry is the fear that insurance …

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Chronic Illness, Contentment, Ehlers Danlos Syndrome, Sjogerns Syndrome

Rest And Recovery

What is rest?  The Merriam-Webster definition of rest states, “sleep, repose…a state of minimal functional and metabolic activities”.  “Rest” is discussed in poetry, books, and the Bible.  When you have chronic illness, rest has a specific meaning. I just returned from a second trip (within one month).  I didn’t rest enough after the first trip and that made the second …

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