Chronic Illness, Contentment, Ehlers Danlos Syndrome, Sjogerns Syndrome

Keep Learning About Pain

No matter how long you’ve dealt with chronic illness, you’ll still be amazed at the new things it brings to your life.  Just when you think you have learned about your disease, it presents you a new problem. Having Sjogren’s Syndrome on top of Ehlers Danlos Syndrome has me confused.  Some of the symptoms overlap, so I don’t know which …

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Chronic Illness, Contentment, Ehlers Danlos Syndrome, Sjogerns Syndrome, Sleep Apnea

Two Days of Remedies

In the last two days, I’ve completed three medical appointments.  It seems like that they come in bunches.  Chronic illness naturally brings a great amount of appointments with doctors, therapists, and even dentists. Yesterday, I experienced the result of having Sjogren’s Syndrome and Ehlers Danlos Syndrome.  When you have either of these disorders, teeth suffer.  EDS causes teeth to crumble.  …

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Chronic Illness, Ehlers Danlos Syndrome

Rare Disease Day 2018

Today is Rare Disease Day!  It’s an international day of awareness for diseases that are rare.  Many diseases are not well-known.  Because they don’t affect huge amounts of people, they are largely ignored by the medical profession.  Doctors don’t study them in medical school, so they are not diagnosed easily.  Sufferers are referred to numerous specialists before they finally get …

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Chronic Illness, Contentment, Ehlers Danlos Syndrome, Sjogerns Syndrome

How to Face Challenges in 2018

Challenges: facing them and conquering them are two different things.  I’m looking to 2018 with challenges ahead.  The difficulties that I’m speaking of are almost all health-related.  When we go from one year to the next, we tend to evaluate our past and dream about the future possibilities. I always hope to look at the New Year with a positive …

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Chronic Illness, Ehlers Danlos Syndrome, Sjogerns Syndrome

First Do No Harm

Living with many Chronic Illnesses can be so frustrating!  When you’ve put yourself through numerous tests and the inconvenience, cost, and pain that goes with testing, you expect that things will now improve.  But, when some people in the medical field are worthless, your life becomes a nightmare. After receiving my definitive diagnosis of Sjogren’s Syndrome, my worst nightmare began.  …

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Chronic Illness, Contentment, Ehlers Danlos Syndrome

A Diagnosis of Sjogren’s Syndrome

I finally have some results of testing done this month and last.  I haven’t heard from all the doctors, but one test result is now ready.  I do have Sjogren’s Syndrome.  My lip biopsy results were positive for Sjogren’s, so now I will be seeing the rheumatologist. The list of results that I’m negative for: Diabetes, Cancer, Muscle diseases, and …

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