Chronic Illness, Ehlers Danlos Syndrome

Ehlers Danlos Syndrome Awareness Month 2018

I’ve been writing about EDS Awareness Month for quite a few years.  Even though my great readers have heard about this, most people haven’t.  Many doctors are also unaware or are poorly educated about it.  Because diagnosing it and treating it are such a problem, it’s important to keep awareness movements active. Ehlers Danlos Syndrome is a genetic condition that …

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Chronic Illness, Contentment, Ehlers Danlos Syndrome, Sjogerns Syndrome, Sleep Apnea

Finding Joy In This Journey

Whew!  What a week!  This week was a busy time for appointments.  I had physical therapy twice, a mammogram, gynecologist, and allergy specialist appointments.  I’ve learned, yet again, that too much activity equals severe consequences. Wednesday at PT, the therapist increased my exercises too much and I came home to crash afterwards.  Thursday was the day of the medical appointments.  …

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Chronic Illness, Contentment, Ehlers Danlos Syndrome, Sjogerns Syndrome

Keep Learning About Pain

No matter how long you’ve dealt with chronic illness, you’ll still be amazed at the new things it brings to your life.  Just when you think you have learned about your disease, it presents you a new problem. Having Sjogren’s Syndrome on top of Ehlers Danlos Syndrome has me confused.  Some of the symptoms overlap, so I don’t know which …

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Chronic Illness, Contentment, Ehlers Danlos Syndrome, Sjogerns Syndrome, Sleep Apnea

Two Days of Remedies

In the last two days, I’ve completed three medical appointments.  It seems like that they come in bunches.  Chronic illness naturally brings a great amount of appointments with doctors, therapists, and even dentists. Yesterday, I experienced the result of having Sjogren’s Syndrome and Ehlers Danlos Syndrome.  When you have either of these disorders, teeth suffer.  EDS causes teeth to crumble.  …

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Chronic Illness, Ehlers Danlos Syndrome

Rare Disease Day 2018

Today is Rare Disease Day!  It’s an international day of awareness for diseases that are rare.  Many diseases are not well-known.  Because they don’t affect huge amounts of people, they are largely ignored by the medical profession.  Doctors don’t study them in medical school, so they are not diagnosed easily.  Sufferers are referred to numerous specialists before they finally get …

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