Chronic Illness, Contentment, Sjogerns Syndrome

Groanings

Home again and as usual, my pain has gotten worse.  Waking up in severe pain, terribly swollen eyes, and a terrible headache seems to be the normal for my post-travel body.  Since I can’t even take an Advil, I’m miserable.

groan

I’ve spent the day rotating my ice-packs to lots of places on my body.  My head, neck, lower back, upper back, and hip have all been enjoying the frozen, pink skin.  Ice-packs (wrapped in a towel) are my only relief-bringing device today.  I don’t have the energy to do anything else to help myself.

Spending a Sunday in my pj’s and not even getting a shower makes me feel pitiful and even angry.  I hate living like this!  It would be so much more like living if I could get up, shower, go to church, cook a meal, etc.  After I get angry, I just have to get over it.  This is easier said than done on some days.

Sjogren’s Syndrome is a disgusting disease and it’s really hard to fight it.  Some days I feel like I’m fighting and some days I’m just whipped.  Just like a boxer, I feel like the bruised and bloodied loser in the corner.

We returned home and found that the flooding had not affected us.  I’m very thankful that we didn’t suffer a flood inside our home.  The outside will need work, though.  The mulch washed away from our plants and some of the dirt is gone, too.

Fighting Sjogren’s Syndrome? Maybe tomorrow

Hubby can take a shovel and repair our garden area in a few hours.  The sad thing is that my body doesn’t recover from trips in the same amount of time.  In fact, my body never really recovers.  Hopefully, my body will get a little better.

Starting 400 mg of Plaquenil on Thursday leads me to hope that this therapeutic dose will someday help me fight this Sjogrens.  I wonderful how long it’s going to take to work?  I wonder if it will work at all?

Even though these miserable days make me feel like I’m 90 years old, I must keep telling myself that my life isn’t over.  I’m 56 and still have a portion of my mind left.  With that in mind, I must keep fighting the fight.  Maybe tomorrow I’ll feel like doing that.

And in like manner the Spirit also helpeth our infirmity: for we know not how to pray as we ought; but the Spirit himself maketh intercession for us with groanings which cannot be uttered; Romans 8:26

@2018, copyright Lisa Ehrman

Romwe Generic Fall & Winter

4 Comments

  1. courtney hennagir

    I know this doesn’t help at all but I wanted to send a whole lot of love your way. I have followed you for a long time and your blogs have always brought me joy. I am always thinking of you and wishing you the very best.

    1. xaoti

      Thank you, Courtney! It really does help to hear from you 🙂 Your kind thoughts and well-wishes bring me joy and encouragement.
      I hate to write negative posts, but always want to be honest and hope that it will help someone who might be reading. God bless 🙂

  2. Sorry to hear of your pains Lisa, hope the post travel flare up will settle down soon! Recently my Sjögren’s has been giving me new problems as well, and it’s really no fun, so I’ll join you in the ‘club’! 😉

    1. xaoti

      My flare fatigue has definitely improved! I’m sorry to hear of your Sjogren’s problems. I don’t think many people realize all the things that can come with Sjogrens. We’re learning the hard way.

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