Chronic Illness

December Link Party With “A Chronic Voice”

Chronic VoiceThis is my first month to join A Chronic Voice in sharing my thoughts on specific prompts.  This should be fun!  I’ll be sharing about these ideas:

Prompts

Recovering

After a month of traveling for the holidays and to doctors appointments, my body needs to recover.  The hardest part of this recovery process is the forced wean off of some of my medicines.  When I headed to the appointment for Autonomic Testing, the doctor said these tests won’t be properly done as long as I’m taking certain medications.  Weaning off of my only “pain” medicines was the cause of many awful side-effects and I actually failed one of the weans.  My body is recovering and most of the weaning side-effects have gone away.

Medical

Shopping

Yes, the shopping season is in full swing.  I’m thankful for online shopping, because almost all of my purchases are made on the web.  My packages have been arriving every day and I try to wrap them as they come in.  It’s much less painful to wrap one or two presents each day, than to try and have a big wrapping party.

 

Enjoying

What I enjoy has certainly gone through a chronic-illness evolution.  Many things that bored me in the past are now a favorite past-time.  One example of this is the type of television that I now watch.  In the past, Hallmark movies and Lifetime movies caused many an eye-roll.  But now, these light-hearted Christmas flicks are a peaceful part of my day.  These types of movies are cheerful and filled with Christmas music.  I’m also enjoying the lights of my Christmas tree and candles flickering.  With my dog cuddled beside me, I can enjoy the Christmas season.

Reminiscing

Reminiscing can make me sad.  Every Christmas, since my poor health took over, I remember all the wonderful experiences playing Christmas music on my flute or piano.  As a musician, losing the ability to perform is frustrating and depressing.  When you spent your young life working toward a career, it’s very hard to give it up.  But, chronic illness has taken away my ability to play, because of pain and finger instability.  I’ve had to let these feelings go, but that doesn’t stop the memories.  I’m thankful that I had those years and all the joy that came from performing.

Piano

Preparing

While I am preparing for Christmas, I’m also preparing for more medical tests.  My insurance was canceled and is being replaced by a sub-par policy. This new insurance will not cover my specialists who are testing me for various diseases.  It will also not cover pain-management and other health issues.  So, December has become a marathon of testing, as I try to get all the tests done before my insurance will not cover them.  Testing far from home is hard because the travel is painful and expensive.  Having to get hotel accommodations, meals, and dog-boarding costs too much.  We also want to visit family during the holidays.  There are many things to anticipate; good and bad. I’ll do my best to focus on the good!

I’m glad to join The Chronic Voice in this Chronic Illness Link Party for December.

@2017, copyright Lisa Ehrman

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6 Comments

  1. Reminiscing can be such a painful word, especially when you’re in poor health now. But I’m glad I included this prompt because I’ve gained a glimpse into the amazing things others with chronic illness used to do. And I had no idea you used to be a musician, on the flute and piano to boot, that’s simply amazing!! I played the flute too in primary school so nothing as advanced 😉 and also learned the piano til grade 5 and wrote a couple songs 🙂 Sending you much love this xmas and thanks so much for joining us in this linkup! Hope to see you next month! 😉

    1. xaoti

      It’s a great word to consider with chronic illness. I’ve noticed many musicians on various EDS forums. My long skinny fingers used to fly, but not anymore. You have fond memories of your musical experiences, too. I enjoyed the linkup! Thanks for planning these each month. Have a wonderful Christmas 🙂

  2. I enjoyed reading your answers to the prompts. Like you, I do the bulk of my shopping online these days and it really does make my life easier. I’m sorry reminiscing about your musical past brings you pain. I’m sure something that gave you so much joy was hard. I had to chuckle a little when I read about the Hallmark movies – the same thing has happened to me. I used to refuse to watch them because most of them are so sappy and predictable, but now, I enjoy having something to watch that doesn’t take a lot of thought and that turns out well in the end. I hope you have a very blessed Christmas.

    1. xaoti

      Thanks so much, Terri. The movies are very predictable, but like you say, they do turn out well in the end. I love how they decorate every scene, too. It puts me right in the Christmas spirit. I hope you have a healthy and happy Christmas 🙂

  3. I totally relate to you on so many things! I lost my insurance on December 1st so the month of November for me was seeing specialists, getting labs, and many more things done to prepare for having not so good insurance starting this month! Also, I am in my mid-20s and I graduated from college with a degree in Baking & Pastry and after one working in the field for about six months post graduation, my Crohn’s took a turn for the worse and I was unable to stand on my feet for 8 hours at a time anymore. I know its devastating when your passion is ripped from you due to your health. I really hope that you can get the answers you need! Thank you for your story! Merry Christmas!

    1. xaoti

      Sorry to hear about your insurance change. It’s so frustrating, but at least you got some testing done prior to the end of this. I know it’s hard for you to not be able to work in your field. Crohn’s sounds terrible! I’m so sad to hear that you can’t bake anymore. I hope that there will be improvement for you or maybe a new treatment. Thanks for sharing 🙂 Merry Christmas to you, too!

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