Chronic Illness

Invisible Disabilities Week

But, you look so good!   You just need to get out more!  Exercising is all you need.  There’s nothing wrong with you, it’s all in your head.  If you’ve heard some of these comments, you might have an invisible illness.


This is Invisible Disabilities Week!  It’s important, because many people make snap judgements about our health.  You can’t tell if a person is disabled, just by looking at them.  A person doesn’t have to be in a wheelchair to have a severe disability.

The IDA (Invisible Disabilities Association) is hosting this annual event, which was started in 2014.  They long to bring awareness, understanding, and support during this week.  My facebook picture has an IDA frame and states, ” 74% of Severe Disabilities are Invisible”.

74% of Severe disabilities…..that’s unbelievable you say.  But, it’s true.  We all need greater understanding of what we can’t see.  It’s easy to judge when you see someone use a wheelchair or park in a handicapped spot.  But, you don’t know what caused them to need these resources.  Many people have a Handicapped Parking Badge on their car, but may look fine to you.  They don’t need to be judged.  They have a good reason to get a Badge!


I have disabilities that are all invisible: Ehlers Danlos Syndrome, Sjogren’s Syndrome, Mast Cell Activation Syndrome, and other awful conditions.  These illnesses cause me severe pain, horrible fatigue, and many other problems.  When I get dressed up, fix my hair, and put on make-up I’m told, “you look great, you must be feeling better.”  Nothing could be farther from the truth.

Joni and Friends talks about Invisible Disabilities HERE.  Although Joni’s disabilities are easy to see, she talks about how it must be harder to live with the problems facing those of us with invisible disabilities.

Do you have an invisible disability?  How does it affect your life?  This is great week to share your personal story and help people to be more aware and more educated.

@2018, copyright Lisa Ehrman

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  1. Thank you for posting this! Would it be okay if I share this on my blog?

    1. xaoti

      That would be great! Spreading more awareness is wonderful. Thank you, Kathy 🙂

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