Chronic Illness, Ehlers Danlos Syndrome

Taking New Steps

Every day I check my online medical chart to see if new test results have been posted.  I was happy with the latest set posted yesterday.  These x-rays were ordered by the rheumatologist to check for signs of Sarcoidosis and Interstitial Lung Disease.

Steps

The lung x-rays were clear, and I’m so thrilled and thankful!  Lung diseases are horrible and I’m beyond happy to not have signs of this.  The x-rays of my hands and feet were very informative and not surprising.

The hands showed lots of arthritis, degeneration, and specific joint levels of degeneration.  There was evidence now of what I could already feel.  The good thing the x-rays revealed was the lack of inflammation.  This reinforces my diagnosis of osteoarthritis, and not rheumatoid arthritis.  Osteoarthritis still causes pain, but the autoimmune disease of RA is very scary.

The feet x-rays showed very similar results as my hands.  The damage was degenerative and not inflammatory.  The big-toe joints were severely affected.  I can attest to this, because the joint is much enlarged and very painful when I walk.  The x-ray showed flat feet upon standing, which is typical for Ehlers Danlos Syndrome.

xray
not my foot

One result was surprising to me.  I have Heel Spurs on both heels.  A few years ago, I was treated in Physical Therapy for Achilles Tendonitis, and I had severe pain in the back of my heels.  I wish x-rays had been done at that time.  Now, I know that the spurs (underneath my heels) are there.

I looked up shoe options for my specific foot problems.  This is something I had not seen before, and in the past my expensive shoe purchases had not alleviated any of my foot pain.  This is a huge problem for me, and I have not walked in years (more than a few steps at a time).  Now, I have found that doctors recommend about a 1 inch heel with a rocking style toe.  They recommended shoes like Dansko and Hoka One tennis shoes.

I gladly made these purchases and will begin wearing them immediately.  I will try anything to get back on my feet and start moving.  My lack of exercise has caused me to gain a lot of weight.  Extra weight just increases strain on my degenerating joints.  Even though I’m 55 and out of shape, I can’t give up my desire and plan to exercise and improve my body.

Disclaimer: I’m not a medical expert.  These are only my experiences, not advice for you.  If you have a medical problem, please consult your personal physician.

@2018, copyright Lisa Ehrman

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4 Comments

  1. Cindy Brooks

    I hope you find some relief with your new footwear!

    1. xaoti

      Thanks! I’m hopeful to try something new 🙂

  2. It’s hard to find motivation to exercise when your body won’t cooperate. I am glad you found out what was causing you pain and to find remedy for it so that you can move forward. You will do just fine because you are mentally ready and prepped to do what it takes to get to your goal. You got this and small steps are definitely the winner!

    Maureen | http://www.littlemisscasual.com

    1. xaoti

      Thanks! You’re such a good encourager 🙂

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