Another day, another doctor’s appointment. Actually, I was very happy to go to this appointment. I was referred by my new rheumatologist to dermatology. I’ve wanted to get to the bottom of my rash problem for 7 years!
Over the last 7 years, I have been to the dermatologist twice. One doctor thought the rash looked like a lupus rash. The second doctor thought it looked like eczema. Neither doctor performed a biopsy. As I’ve since found out, rheumatologists completely ignore everything except results from a biopsy. I’ve asked for this, but today was my first biopsy on a 7 year rash.
Getting to the truth in autoimmune disease diagnosis is unbelievably slow, frustrating, and cruel. It’s cruel to make a person who is suffering, wait for years to get properly diagnosed and receive treatment. Yes, I’ve been treated horribly when I’ve been ignored and neglected by doctors. No one should have to lie on the bed or couch for years, wanting to be better.
Well, today I had a skin biopsy. This was a simple cut on my back, with three stitches. Such a simple little cut by a doctor, will finally bring black and white proof. This proof will allow rheumatologists to know if my rash is caused by lupus or not. So simple; and why did it take so long?
I have no idea why this took so many years, but I’m glad that it’s done. I’m so relieved! Whatever the results show, I don’t care. I’m just glad to know the truth. As far as I know, this will be the last test needed to get diagnosed. My appointment for follow up isn’t until June. I hope that the appointment can be moved up to a sooner date.
Just as chronic illness is physically painful and exhausting, the mental and emotional pain is unbearable. If you’re dealing with chronic illness you know what I mean, and I wish better days for you. Hubby says that I handle it better than anyone he’s ever seen, and that’s a sweet thing to say. But, I know deep down that I couldn’t take it without the grace of God.
Disclaimer: I’m not a medical expert. This post contains only my experiences. If you have a medical problem, please consult your personal physician.
@2018, copyright Lisa Ehrman