After such an emotionally trying time with my doctors, I’ve finally received some news today. I call it good news even though it’s not good to be chronically ill. But, it’s good to finally have my diagnosis made official by a rheumatologist for Sjogren’s Syndrome.
The doctor’s NP just called to tell me that they received all my lab reports and agree that the lip biopsy is positive for Sjogrens. I never expected to have this, nor did I want it. But, when I learned that it is present, I just wanted to start treatments to help. With this call comes a prescription for Plaquinil and a pain cream. Although I tried Plaquinil before, the previous dose was twice what I will now start with.
Starting at a 1/2 dose should help with side-effects, even though it may take longer to build up to a therapeutic dose. But, I’m thankful that my new rheumatologist is working with my body, as it is. This news of beginning treatment has taken such a burden from me.
This morning I also received a call to say that my referral has been sent to see a CTCL specialist. I may not have this disease, but if I do, I want to know. Having a true diagnosis is the only way to help my body. Having a “maybe” diagnosis or “wait and see” is just not smart. I can’t believe that doctors would choose this option when you’re facing any type of cancer diagnosis.
I’m so thankful that these two calls came today. God has truly answered prayers!
@2018, copyright Lisa Ehrman
Disclaimer: I’m not a medical expert, and this is not medical advice. If you need medical help, please contact your personal physician.