Chronic Illness, Sjogerns Syndrome

Treatment Time

Treatment Time

After such an emotionally trying time with my doctors, I’ve finally received some news today.  I call it good news even though it’s not good to be chronically ill.  But, it’s good to finally have my diagnosis made official by a rheumatologist for Sjogren’s Syndrome.

The doctor’s NP just called to tell me that they received all my lab reports and agree that the lip biopsy is positive for Sjogrens.  I never expected to have this, nor did I want it.  But, when I learned that it is present, I just wanted to start treatments to help.  With this call comes a prescription for Plaquinil and a pain cream.  Although I tried Plaquinil before, the previous dose was twice what I will now start with.

grateful

Starting at a 1/2 dose should help with side-effects, even though it may take longer to build up to a therapeutic dose.  But, I’m thankful that my new rheumatologist is working with my body, as it is.  This news of beginning treatment has taken such a burden from me.

This morning I also received a call to say that my referral has been sent to see a CTCL specialist.  I may not have this disease, but if I do, I want to know.  Having a true diagnosis is the only way to help my body.  Having a “maybe” diagnosis or “wait and see” is just not smart.  I can’t believe that doctors would choose this option when you’re facing any type of cancer diagnosis.

I’m so thankful that these two calls came today.  God has truly answered prayers!

@2018, copyright Lisa Ehrman

Disclaimer: I’m not a medical expert, and this is not medical advice.  If you need medical help, please contact your personal physician.

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