Chronic Illness, Sjogerns Syndrome

Treatment Time

Treatment Time

After such an emotionally trying time with my doctors, I’ve finally received some news today.  I call it good news even though it’s not good to be chronically ill.  But, it’s good to finally have my diagnosis made official by a rheumatologist for Sjogren’s Syndrome.

The doctor’s NP just called to tell me that they received all my lab reports and agree that the lip biopsy is positive for Sjogrens.  I never expected to have this, nor did I want it.  But, when I learned that it is present, I just wanted to start treatments to help.  With this call comes a prescription for Plaquinil and a pain cream.  Although I tried Plaquinil before, the previous dose was twice what I will now start with.

grateful

Starting at a 1/2 dose should help with side-effects, even though it may take longer to build up to a therapeutic dose.  But, I’m thankful that my new rheumatologist is working with my body, as it is.  This news of beginning treatment has taken such a burden from me.

This morning I also received a call to say that my referral has been sent to see a CTCL specialist.  I may not have this disease, but if I do, I want to know.  Having a true diagnosis is the only way to help my body.  Having a “maybe” diagnosis or “wait and see” is just not smart.  I can’t believe that doctors would choose this option when you’re facing any type of cancer diagnosis.

I’m so thankful that these two calls came today.  God has truly answered prayers!

@2018, copyright Lisa Ehrman

Disclaimer: I’m not a medical expert, and this is not medical advice.  If you need medical help, please contact your personal physician.

3 Comments

  1. I’m sorry you are dealing with chronic illness, I myself know personally how difficult it can be. I’m happy that you are finding some answers though so that you can have some treatment to live more comfortably.

    1. xaoti

      Thank you, Nicole. You’re very kind! I’m sorry that you are dealing with chronic illness and hope you are getting good treatment 🙂

  2. Calvin

    Good to hear, hope you get the treatment you need. Post sounds like good news

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