Chronic Illness, Contentment, Ehlers Danlos Syndrome, Sjogerns Syndrome, Sleep Apnea

Finding Joy In This Journey


Whew!  What a week!  This week was a busy time for appointments.  I had physical therapy twice, a mammogram, gynecologist, and allergy specialist appointments.  I’ve learned, yet again, that too much activity equals severe consequences.

Wednesday at PT, the therapist increased my exercises too much and I came home to crash afterwards.  Thursday was the day of the medical appointments.  We also took our youngest out to celebrate his 4.0 for the semester at college.  When I got home, I felt like I had food poisoning, but it was just severe nausea.

I slept only a few hours and was sick all the next day with headache, nausea, and worsening pain.  My vision was so blurry and still is today, though the nausea is a little better.  The pain is still unbearable, but I’m just resting as much as I can until this improves.


Flaring from too much activity is rotten, but I just can’t seem to avoid it sometimes.  Often, I just am stubborn and don’t want to cancel an appointment.  Most days I’m exhausted from just showering and doing my hair and make-up.  It’s a never-ending cycle of dealing with chronic illnesses.

These are the times when you cry and pray and just want it to stop.  Then, when the worst moments pass, I can give thanks for some little-something that is a blessing.  The flowers that my hubby brought me, and his encouragement brought me to happy tears.  There really is joy in this journey.

@2018, copyright Lisa Ehrman


  1. It’s great that your husband is so supportive and caring for you. Congrats to your son for his 4.0 — that’s a great accomplishment.

    1. xaoti

      Yes, I’m blessed! Thanks, my son really works hard to develop the talent God gave him. I’m really proud of him 🙂

  2. Debbie P

    I hope that you are getting a little down time. I’ve been dealing with chronic pain for years now. That are other issues etc. can be really overwhelming to say the least. You’re in my prayer.

    1. xaoti

      Thank you for the prayers, Debbie. I’ve been resting non-stop, which helps. I’m sorry that you also have chronic pain. It sounds like you’ve learned to take it easy on yourself 🙂

  3. Rosanne

    You have such a positive attitude in the face of suffering. I too have faced tremendous health issues the last 20 years.

    1. xaoti

      Some days are easier than others. 20 years is a long time to deal with bad health. I hope you can find better treatments that can bring you some relief. I keep hoping that each new treatment can help, but my only way to stay positive is that I know God has my life in His hands 🙂

  4. Casey Garvey

    I find it hard to find the small joys in life most days. I lost my son to sids, and then my life. The pain is nasty.. I have no support and find it hard to leave my bed some days, let alone shower!

    1. xaoti

      I’m so sorry for your loss, Casey. The pain of that must be the worst kind of all. I wish you had support, because it makes things so much better. My faith in God gives me so much hope. I hope you’ll keep finding friends online, because that helps me so much to talk to people who understand. I’ll pray that you can find more peace 🙂

  5. Megan Wilson

    That’s so sweet of your husband! It’s wonderful to have support through our significant others. I’m sorry to hear of your suffering, and I agree with you about it making you appreciate the good things that much more! ❤

    1. xaoti

      Thanks, Megan 🙂 Having loving support makes all the difference to us, for sure! Those of us with chronic diseases have that new level of appreciation for every little blessing 🙂

  6. gloria patterson

    I am a fan of taking LIFE ONE DAY AT A TIME! You do what you can, rest when you can.

    1. xaoti

      You’ve got it right, Gloria! Thanks 🙂

  7. Russ W

    You have such a fantastic attitude! Thank you for this post…

    1. xaoti

      You’re very kind, Russ! You’re welcome, and thanks for stopping by 🙂

  8. Woohoo! That’s awesome your son has a 4.0. Encouraging them on to keep up the good work is best. You’re doing awesome.

    1. xaoti

      Thanks, Tarissa. I’m thankful he’s so good at math, but he didn’t get it from me 🙂

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