This past Sunday, I was blessed to celebrate another birthday and Mother’s Day. It was a special day with my children and husband and we had a quiet day at home. Memories were made and joy was overwhelming!
But, most days aren’t days for celebrating. Most days are made for surviving. The typical day in my life is directed by the chronic illnesses and the symptoms they cause. I would prefer to say that chronic illness doesn’t define me, but it certainly hinders me.
If I’m not wise enough to pace myself, the chronic illness symptoms will ruin my day. That’s why my typical days focus on taking care of myself to prevent my symptoms from getting worse.
I start my days with breakfast and pills. I always look forward to a couple of cups of coffee to help me to wake up. After a little blogging, my goal is to shower. Unfortunately, today came with an Aura. I feel more tired and worry that a migraine will follow. Many times I leave the shower and need to lie on the bed for about 10 minutes, because my heart is racing and I’ve become breathless.
On a good day I’ll style my hair and put on make-up. But, many days my hair just dries naturally as I rest on the couch. Lunch comes with more pills. Putting a load of laundry comes next. Laundry is one chore that I can do easily, because there isn’t much bending or lengthy standing. I sit to fold clothes and towels and put them away after I’ve rested again.
If I’m able, I’ll do another load of laundry. I check my appointment schedule and see that my new (awful) insurance requires a pre-authorization for each appointment with a specialist. So, I spend over an hour making phone calls. Most of this time is spent on hold as I listen to terrible music. Another call goes to my allergist to appeal the insurance refusal to pay for my Epi-Pen. I can’t believe that they’re not covering this life-saving device. These types of phone calls can really stress me out, because I have to explain these problems over and over.
Dinner plans always include a very simple menu that I can quickly throw in the oven. If I’m smart (and my brain fog doesn’t affect me) I’ll put on a crock-pot in the morning. My easy meals are usually chicken with vegetables or home made pizza. These two meals don’t require me to stand up very long. Standing more than a few minutes brings on attacks of simple fiber neuropathy. The tingling, burning, sweats, dizziness, and nausea force me to lie down often. These are my worst symptoms and prevent me from enjoying many activities.
More pills come with dinner and more at bedtime. Isn’t that exciting? We usually watch tv until bedtime. Hooking myself up to the CPAP is my last activity for the day. This is what a typical day for me is like. Yes, it’s very boring, but I do the best I can. I almost never give up hope that this typical day can change for the better.
I’m grateful that God continues to give me life and pray for better health. But, more than than that, I pray that He will allow me to encourage others in their journey. His love really does give me an inner peace.
Disclaimer: I’m not a medical expert. If you need medical advice, please consult your personal physician.
@copyright Lisa Ehrman