Chronic Illness

The Search That Never Ends

After the shock of my appointment wore off, I began to worry.  Frustration and despair followed as I contemplated the situation I’m in.  Fearing the results of my tests is just the beginning. Knowing that the doctor suspects something worse than Sjogren’s Syndrome has made me afraid.  I’m afraid of Sarcoidosis.  I’m afraid of Interstitial Lung Disease (ILD).  As I’ve …

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Chronic Illness

World Kidney Day 2018

Today is World Kidney Day.  “Kidneys and Women’s Health: Include, Value, Empower” is the theme this year.  Chronic Kidney Disease affects 195 million women worldwide.  There are 600,000 deaths from this disease each year.  This is the 8th leading cause of death in women.   Men and women both suffer with Chronic Kidney Disease (CKD), but there seems to be …

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Chronic Illness, Ehlers Danlos Syndrome

Rare Disease Day 2018

Today is Rare Disease Day!  It’s an international day of awareness for diseases that are rare.  Many diseases are not well-known.  Because they don’t affect huge amounts of people, they are largely ignored by the medical profession.  Doctors don’t study them in medical school, so they are not diagnosed easily.  Sufferers are referred to numerous specialists before they finally get …

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