Chronic Illness, Sjogerns Syndrome

Sjogren’s Syndrome Awareness Month

April is Sjogren’s Syndrome Awareness Month.  Sjogrens is pronounced Sho – Grins and is a common autoimmune disease.  It may occur frequently, but many people have never heard of it. There are about 4 million people in the US with Sjogrens.  It can be difficult to diagnose, because it presents differently in people.  The symptoms most-often associated with Sjogrens is …

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Chronic Illness, Contentment, Ehlers Danlos Syndrome, Sjogerns Syndrome

Keep Learning About Pain

No matter how long you’ve dealt with chronic illness, you’ll still be amazed at the new things it brings to your life.  Just when you think you have learned about your disease, it presents you a new problem. Having Sjogren’s Syndrome on top of Ehlers Danlos Syndrome has me confused.  Some of the symptoms overlap, so I don’t know which …

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Chronic Illness, Contentment, Ehlers Danlos Syndrome, Sjogerns Syndrome, Sleep Apnea

Two Days of Remedies

In the last two days, I’ve completed three medical appointments.  It seems like that they come in bunches.  Chronic illness naturally brings a great amount of appointments with doctors, therapists, and even dentists. Yesterday, I experienced the result of having Sjogren’s Syndrome and Ehlers Danlos Syndrome.  When you have either of these disorders, teeth suffer.  EDS causes teeth to crumble.  …

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Chronic Illness, Sjogerns Syndrome

Treatment Time

After such an emotionally trying time with my doctors, I’ve finally received some news today.  I call it good news even though it’s not good to be chronically ill.  But, it’s good to finally have my diagnosis made official by a rheumatologist for Sjogren’s Syndrome. The doctor’s NP just called to tell me that they received all my lab reports …

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Chronic Illness

April Prompts: Marvelling, Continuing, Splurging, Balancing, and Investing

I’m happy to join A Chronic Voice in her monthly prompts.  As chronic-illness bloggers, we value each other in the ways we can learn and grow reading about each others’ experiences.  April has been a trying month so far, but I look forward to better days. Marvelling: I do truly marvel at the unbelievable roadblocks that stop people with chronic …

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Chronic Illness

Doctors: I’ve Had It

I’ve had it!  Doctors!  My initial skin biopsy showed that there was a likely diagnosis of Cutaneous T-Cell Lymphoma.  When the final call came from the dermatologist today, he said that it was possible, but not a definite diagnosis. What does that mean?  He said that the biopsy showed a suspicion of CTCL.  What?  Give me a break!  The dermatologist …

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