Another Recovery Day

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We drove back home yesterday, which took over eleven hours. My tongue and the roof of my mouth had been “burned” by drinking a cold pineapple drink at Starbucks. It’s been two days and it hasn’t improved at all. I guess this is just another gift from Sjogren’s. So, my food tastes a little funny and my tongue hurts a little bit.

I’m very glad to get home. I hate to say that, because I would love to see my grandchildren more. One child cried, “Mimi, don’t leave!” That made it so much more difficult. But, the stress from all the meetings and discussions about the legal matters was horrible. I’m having bad headaches from the car ride.

I hadn’t been in a lawyer’s office much; only to sign papers for our wills. The guys were very nice, but it leaves me with bad emotions and I hope this all turns out for the best. With a six-month time frame, I have no idea when I’ll have to make this trip again. I also may have to move permanently to be a caregiver.

This will require replacing my insurance with a new state’s policy and finding all new doctors. I have so many: GP, Rheumatologist, Cardiologist, Opthamologist, Neurologist, Pain Management, Immunologist, Dermatologist, and I hope that’s all. That’s going to take such a long time! Ugh!


I’m praying about the entire situation and just want God to be my guide. These are paths I’ve never walked before. Being a caregiver is so far out of my comfort zone. My husband laughs about my non-existant gift of mercy. The last job on earth I ever wanted was to take care of the elderly. So, if God puts me in this position I’m sure He has a lot to teach me.

I don’t think of it as a punishment, but as an opportunity to become a better me and a closer Christ-follower.

Hebrews 12:10 They disciplined us for a little while as they thought best; but God disciplines us for our good, in order that we may share in his holiness.

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