After my awful experience the other day, I’m trying to get back to my normal. Unfortunately, I’m not close to that. My pain levels are terrible and there is nothing getting done. It’s not that I’m feeling sorry for myself, but I’m just numb. Thankfully, I’ve been alone for a few days. I’m not able…
Author: Lisa
Rare Disease Day
How many Rare Diseases do you know? 1 in 20 people will live with a rare disease at some point in their life. I actually have 2 rare diseases: Ehlers Danlos Syndrome and Mast Cell Disease. Most rare diseases have no cure and many go undiagnosed. Rare Disease Day brings awareness to the public, researchers,…
Just Another Awful Appointment
Today I survived my CT scan. It was one of the worst experiences I’ve ever had, and I think it was quite traumatizing. When I returned home, the doctor called to tell me that my arteries weren’t blocked. So, why do I feel like crying? The day began at 4 am, even though there was…
Matters of My Heart
As my list of chronic illnesses has gotten longer and longer, there are times when the worry and stress is overwhelming. The shock of having Coronary Artery Disease is still new. As my pill box has grown, I hesitate to list all my diseases and conditions. My real hope and goal is to live in…
Each Beat of my Heart
When you have medical tests, one of the hardest things to do is wait for the results. After my Nuclear Stress Test on Tuesday, I was very concerned about the results. But, the phone call came quickly on Wednesday morning. I wasn’t called by the nurse, but by the cardiologist herself. She didn’t offer me…
No Pain, No Answers
The day was a dreaded one. It started off with a bang! I woke early to get ready for my appointment. I had an aura in the shower. The crescent-shaped lights were flashing in the front of my vision. In the past, they only flashed (brighter) and moved from one side of my vision to…