• Chronic Illness

    What Is A MCAS Flare?

    What is a Mast Cell Activation Syndrome Flare? Well, I’m learning about the misery of this occurrence as we speak. I’ve had them many times over the past years, but didn’t have a name for them. Last week I had a bad day of itching and skin splotches. Unrelenting burning/itching on most of my body was the way I would describe it. This type of itching usually is a first sign that my body is going into a state of anaphylactic shock. Often, the itching never gets to that stage. This is the best outcome. But, when it does, I (or Hubby) reaches for my Epi-Pen. Since last week, I’ve…

  • Chronic Illness

    A Health Update And Hope

    A Health Update: Fatigue has continued to be a problem that causes me to be nonfunctional. I’m tired when I wake up, all throughout the day, and when I go to sleep. I’ve been tired for so long! I remember the days when I woke up with energy. But, it’s been too far in the past. Sjogren’s Syndrome has certainly been making my life worse. My eyes are dry all day and by the evening, my vision is so bad! Eye drops feel good for about 15 seconds, and then the dryness takes over. I’ve also dealt with dry mouth and skin. I get very frustrated by all the auto-immune…

  • Chronic Illness

    August Thoughts On Chronic Illness

    August has arrived and so it’s time to link up with other chronic illness bloggers. The Linkup Party with A Chronic Voice is an interesting way to share our experiences and feelings about chronic illness. Capturing Bloggers love to capture their experiences and share them with others. Capturing memories is also important, and we all enjoy capturing faces and places on our camera. Whether we are using camera phones or expensive camera equipment, it’s the featured subject that is our focus. These are the times that we don’t want to forget. I’ve been capturing the movements and smiles of my new grandchild. He changes so frequently that I love absorbing…

  • Chronic Illness

    Thankful For Small Moments

    If there were ever a dictionary entry for “pacing oneself”, my picture would not be included. Those of us with chronic illnesses have learned that it’s important to pace ourselves so that we don’t become exhausted. The exhaustion and severe pain that comes from over-doing it is hard to describe. This is often followed by a flare. A flare is basically a flare of symptoms, and we certainly don’t want our symptoms of pain to increase. It’s hard to pace myself. There are so many things I want to do and participate in with my family. During this move, I’ve had to push myself beyond what I should do. Even…

  • Chronic Illness,  Travel

    My Moving Adventure

    The last week has been grueling with last-minute packing, loading, and driving 1,000 miles in a Penske truck. Now that we’ve moved everything into our new home, it’s a mess! We’re all sore, swollen, and exhausted! Because I can’t lift anything, I was just a passenger on our long journey. I’ve never been this far west and moving in a 26 foot truck isn’t the way to be a sight-seer. We did see many beautiful sights along the way. We also fought the traffic, bad roads, and strange hotels. We’re thankful that we made it safely and no one was injured. My feet and ankles are severely swollen and that…