I Never Expected That On My MRI

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No one expected the results that I received today. My MRI of the foot and ankle Friday showed a lot of things that aren’t good. I’m still in shock, so I thought it would be a fine time to write about my MRI findings.

These things I have spoken unto you, that in me ye might have peace. In the world ye shall have tribulation: but be of good cheer; I have overcome the world.

John 16:33

I twisted my ankle in December and it was throbbing, so I got an X-ray. The x-ray didn’t show anything other than a normal ankle. Between then and now there were times when it didn’t hurt much and times when I couldn’t walk. I used ice and kept it propped up, but after 4 months I had enough.

I probably should have been more of a whiner, but whining isn’t my style and I should have pressed for more tests. I suspected that the MRI would show that a tendon was stretched out, because of Ehlers Danlos Syndrome. But, I was really wrong.

The first thing I read on my results sheet were: ” There is extensive marrow signal abnormality throughout the talus”. I had no idea what that meant and had to look it up. The bone they focused on was the Talus. This showed that my bone marrow was abnormal throughout this bone. Ugh!

Insufficiency fracture – was the next problem that showed up on my MRI. This is on the Talus (anterior). The worst finding was that I have Avascular Necrosis. I have poor blood flow and dead and dying bone.

Surgery is necessary to remove the dead bone and the ankle will need a bone or bone/joint replacement or fusion. This is a complex area to treat. Without blood flow, things don’t heal and tendons heal slow in extremities. The recovery is slow and there could be complications.

I read that there could be two surgeries and that if it fails they would need to do a different treatment. There is a possibility of losing a foot or leg if things go wrong with this disease.

I’ll know more when I see the orthopedic doctor. With the necrosis, I’m hoping and praying for a quick appointment. It’s creepy to think of having dead bone in your feet. Tonight I’m trying to think good thoughts, but I really am still in shock. I would have never guessed that I would have this type of health problem.

@copyright, Lisa Ehrman

Disclaimer: I’m not a medical expert. This post contains only my opinions and experiences and is not meant to be taken as medical advice. If you have a medical concern, please consult your personal physician.

https://www.inspire.com/groups/eds-and-hsd/discussion/avascular-necrosis-of-hips-resulting-from-ehnlers-danlos

https://pubmed.ncbi.nlm.nih.gov/32162201

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