Well I finished my last antibiotic this week and my last prednisone last week. The prednisone was miraculous! After I had been on it for a couple of days, my skin started clearing and my itching stopped. I was thrilled each day because my hands stopped bleeding and splitting open. By the end of my pills my thumbs and fingers looked perfectly normal. I couldn’t believe how wonderful it was to have pain-free skin on my hands.
I also stopped having to live on Benadryl. I was able to sleep through the night without waking up clawing myself until I bled. My skin healed and I didn’t itch at all. Even my head and neck stopped itching. It was such a beautiful time and I can’t even express how much I love Prednisone!!!!
Yesterday my finger split open and started hurting. By last night my finger started shedding many layers and it burns. The pain in these two small parts of my body hurt me in a very big way. I can’t take my mind off of them. I tense up every time I touch them on something and get a tight neck and headache.
I don’t know how many times I told my family this week, “Why can’t someone invent something like prednisone that has no bad side effects?” Unfortunately, there isn’t anything that I know of. It’s pretty depressing, but that’s how it goes for so many of our chronic illnesses.
Having Mast Cell Activation Syndrome is a bad thing (because it’s horrible) and because the treatments are not good. Antihistamines work and prednisone works great, but usually prednisone is only given to patients when a crisis occurs. This happens in auto-immune diseases (as in my Sjogren’s) if an organ is being attacked. This treatment is meant to be short-lived.
I’m not an expert, and I know there are exceptions to everything. My dad took tons of prednisone when he was treated for Histoplasmosis. He was losing his sight and this was the treatment in the early ’70’s.
I’m about to take my first dose of Benadryl for the evening and after last night, I’ll probably take a second dose in the middle of the night. At some point I’ll wake myself up while I’m scratching and scratching. I really hate that, but I also hate the grogginess of Benadryl, too. All I can do is try to survive. I’m not going to be able to have everything the way I want it.
I hope you have a weekend with as little pain as possible. God bless!
@2022, copyright Lisa Ehrman
Disclaimer: I’m not a medical expert. This post contains my experiences and opinions and is not meant to be taken as medical advice. If you have a medical concern, please consult your personal physican.