• Chronic Illness

    Cold

    With my White Blood Count being low, it was inevitable that I caught the cold that my husband was suffering from. The last four days have been miserable, and you know what I mean. The stuffy nose, coughing, and head pounding of the common cold are awful. Adding the fatigue of all my chronic illnesses to a rotten cold has been overwhelming. I’ve been sleeping 12 hours every night. Waking up I realize that the fatigue hasn’t improved. All I can do is to wait it out. It will be over in about a week, I hope. Drinking lots of liquids, while I stay wrapped in blankets and watching Amazon…

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    February Hope

    The prompts for February are: Adjusting, Hoping, Surviving, Befriending, and Awakening. I’m happy to write along with other Chronic Illness bloggers in the A Chronic Voice blog linky. These monthly prompts always get me to think. Adjusting Life with multiple chronic illnesses seems to be a life of constant adjustments. There are the awful side effects to adjust to each time we get a new medication. The last five years, it seems that I have been in a constant state of adjusting to new drugs. It sounds simple, but it’s hard to describe how bad it is. I never counted all the drugs that I’ve tried and failed. And, the…

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    Will You Wear Red?

    1 in 3….that’s a third of our mothers and sisters who die from heart disease. Heart disease is the number 1 killer of women. That’s why I wear red today. February 1, 2019, is Wear Red and Give Day. We wear red to spread awareness of heart disease and stroke. 80% of cardiac events can be prevented, so it’s important to tell women how. With an average of 1 person dying every 40 seconds from heart disease, we need to do better. How many people do you know with heart disease? I know plenty, and many in my own family and family tree. I don’t want to be included, but…

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    Good Test Results

    My two doctor’s appointments are done for the week and I feel a sense of relief. Yesterday was my appointment with the general practitioner. Today I spent my afternoon getting an ECHO. My GP appointment consisted of talking through my medication list and my upcoming tests. Because my new insurance doesn’t pay for many of my prescriptions, I had to explain that to her. This helped her to see why she now was having to do physician authorizations for some of my medications. Then, she made sure my vaccinations and other tests were scheduled. The only new one she scheduled for me was a Bone Density test in April. As…

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    5 Resources for Cheaper Medications

    Out of the 13 medicines that are prescribed for my family, 5 of them are not covered under our new insurance. When the new year began, I was initially happy that our new insurance covered my doctors and had a lower premium. We knew that the lower premium would be balanced out by the higher co-pays for some specialists. But, we never expected to have the prescription benefits be so poor. The last two days have been a depressing scramble to find ways to get my medicine without going bankrupt. These aren’t unnecessary medicines, either. They’re medicines that treat Sjogren’s Syndrome, Mast Cell Disorder, Epilepsy, Ehlers Danlos Syndrome, Small Fiber…

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    I Need My Meds

    When I ran out of my muscle relaxer medicine on Friday night, I had already placed the online refill order. I wasn’t really worried about picking it up on Saturday morning, because there were two refills remaining. Simple, right? The online order wasn’t confirmed and then the problems started. The pharmacy tech made incorrect assumptions and caused a lot of trouble. Next, she contacted the doctors and told them they must contact her with a new prescription. Because I had been on vacation, I had to get medicine refills out of state. Using the same pharmacy in a different state was supposed to be easy. The result this time was…