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You would think that I could just go to appointments with a calm attitude. But, it doesn’t matter how often I go, my nerves are jittery. Just imagining the results of another test or a doctor’s comments fills my mind with too many thoughts.

I shouldn’t speculate, so on the drive over I prayed and trusted God. I felt peace as I arrived and hobbled up to the office. I was quickly taken to get x-rays of my ankle. We didn’t need to wait long in the patient room for the doctor to enter.

He hesitated to speak and I knew then that there wasn’t any improvement in the talus. That very important bone still showed signs of Avascular Necrosis. There wasn’t any healing in the fracture either. I told him that the pain was the same as my appointment six weeks ago.

He began to tell me what he recommended. The talus was stable; meaning it hadn’t collapsed. He told me that the surgery to replace the talus wasn’t the best option. There are only 2 years of recorded data following this operation, so he couldn’t tell me how successful it might be.

Finally, all of you be of one mind, having compassion for one another; love as brothers, be tenderhearted, be courteous;

I Peter 3:8

He offered me steroid injections, but I didn’t do that today. I know that steroid injections are not recommended for those of us with Ehlers Danlos. The injections cause damage to connective tissue and it happens even faster for the EDS patient.

I asked him if this could be a forever problem. He said he hoped that it would heal somewhat, but it could be. So, I asked if the long-term plan is to try and manage the pain. He said it could be. So, I hobbled back to the car and came home.

I don’t want to end up with pain every time I walk, but I plan to do as much research as I can. The Ehlers Danlos Foundation might be able to help me with information about this particular injury. For now, I’ll accept that I’m hobbling with a brace and cane.

5 thoughts on “Stable”

  1. So glad to hear an update. Thanks for the reminder about steroids and EDS. Always good to remember for me as the steroid shots become a more and more frequent go to solution. Take care.

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