Spread the love

I’m resting with my swollen feet propped up in the hotel room. I’ve never spent the night in Indiana before, but there seems to be a very loud person in the room above me. Stomping regularly or jumping….I hope they go to sleep soon. Hubby is snoring softly after driving over 500 miles today.

Tomorrow we have the same amount before we reach home. It’s been a fantastic trip visiting with my oldest and his family. The grandbaby is beautiful and fun. This child seems to love us as we love him back. This grandma is exhausted from all the baby holding, feeding, changing, and other joys of having a grandchild.

I didn’t have to do all those things, but I certainly wanted to. The next time I visit the baby, he will weigh more than 20 pounds and I won’t be able to pick him up. After my repair for prolapse, the doctor said I mustn’t lift more than 20 pounds or I will probably need another repair surgery.

Ah, the joys of having Ehlers Danlos Syndrome. When the doctor repaired my fallen organs, he said that he had never seen tissue like mine. It confirmed any doubt I might have had about my EDS hypermobility diagnosis. That will be a sad day when I can’t pick the baby up.

Severely swollen ankles and feet, severe back and joint pain, and severe fatigue is what I get when I travel. Today has proven that in a big way and I dread tomorrow’s drive. The pain in my feet is so awful and will surely get worse.

Blue Ridge Mountains
Blue Ridge Mountains

I hate when I visit family and pretend to feel better than I really do. It’s kind of embarrassing, even though I shouldn’t be embarrassed. I can’t help the fact that I have so many illnesses. I will try to dwell on the blessings of my visit.

We had a marvelous time and my daughter-in-love is an amazing hostess. She fed us healthy meals and prepared our room, leaving chocolate bars on the nightstand.

The Lord is my shepherd, I lack nothing.

He makes me lie down in green pastures,

he leads me beside quiet waters.

Ps. 23: 1-2

Hubby continues to feel weak and more tired. His coloring is very yellow, but his eyes are not. We’re thankful for a safe journey today, after such heavy traffic and seeing wrecks along the way. We pray for a safe completion of our trip tomorrow and blessings on all our family members.

Next week I have the sonogram on my underarm lymph nodes. I hope there is nothing serious going on. I also start my treatment back Monday for the Cutaneous T-Cell Lymphoma. Phototherapy is the first treatment for that disease. Thankfully, it doesn’t hurt. Between my treatments and my husband’s we will be going somewhere every day.

Having multiple conditions means multiple appointments, treatments, and long journeys. I wish you all safe journeys to your appointments.

@2021, copyright Lisa Ehrman

Disclaimer: I’m not a medical expert. This post contains my opinions and experiences and is not meant to be taken as medical advice. If you have a medical concern, please consult your personal physican.

You may also like...

Leave a Reply

Your email address will not be published. Required fields are marked *

This site uses Akismet to reduce spam. Learn how your comment data is processed.