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Waiting On Results

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How are you all doing? Are you living in the hot part of the country? Kansas is in the heat wave and we’ve had temperatures above 100 this week. Thankfully, I haven’t left the house since Monday and have been so grateful to have air conditioning. What a great invention!

Although I don’t like doctor’s appointments, I look forward to the one on the 26th. My general practitioner is meeting with me to go over my latest medicine’s progress. I have seen the blood test results on the lab’s website, but I don’t know how to translate them. I don’t have the previous results to compare them to. All I know is that the testosterone levels were high.

Since the hormones I’m taking now have testosterone in the mix, I would think that the doctor will take that out. Maybe he will increase the other hormones, because they looked very low. But, I’ll have to wait and see what he says.

My other new drug is Wellbutrin and I don’t think my dose is high enough. I honestly don’t even notice any change in my mood at all. My neurologist started me on Topamax with a pretty low dose. Of course, that’s the way a seizure drug should be started. I’m on 50 mg daily and I won’t see him again until November. I think he’ll increase the dosage. Myoclonus is the problem he is treating.

Medicine Pillbox

Myoclonus is when my legs, hips, and arms involuntarily jerk. It’s an annoying problem which started a few months ago. This hasn’t gotten any better and I don’t think it will until I reach a therapeutic dose.

My eye doctor called in a prescription of Restasis on Monday. Because I failed Xiidra, she feels like my insurance should pay for Restasis. There will still be a pretty big co-pay so she gave me a coupon from the manufacturer. I look forward to trying them. I would love to help these very dry eyes that Sjogren’s has given me.

Last night and today I’ve experienced a couple of optical auras. They’re harmless and these have been minor compared to some that I’ve experienced in the past. Waiting on medicines to reach a level when they’ll actually help me can feel frustrating, but that’s just how it is. Patience is a virtue…..right?

There are many problems in my body and many drugs going into it. There is hope that these medicines can improve my health and that’s exciting. Better energy or less symptoms would be such a huge blessing. I’m praying that any of these things can happen!

@2022, copyright Lisa Ehrman

Disclaimer: I’m not a medical expert. This post contains my opinions and experiences and is not meant to be taken as medical advice. If you have a medical concern, consult your personal physician.

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