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World Sjogren’s Day

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Today is World Sjogren’s Day. There are many different types of Rheumatic Autoimmune diseases, and Sjogren’s is the 2nd largest group in the US (after RA). There are 4 million of us in the US. Most people, including doctors, think that Sjogren’s is only dry eyes and dry mouths. But, Sjogren’s is so much more. It can involve tooth decay, organ involvement, lymphoma, neuropathy, and more.

Sjogren’s has this odd name because it was named for Dr. Henrik Sjogren from Sweden. He was an ophthalmologist who discovered the disease in 1933. World Sjogren’s Day is Dr. Sjogren’s birthday. We celebrate his advances to medicine.

People with Sjogren’s have 44 times more chance of contracting Lymphoma than the regular healthy public. Since I’ve been told that I have possible Cutaneous T-cell Lymphoma on my back, I’m waiting to see if I will be officially diagnosed.

Sjogren's

“The Sjögren’s Foundation is aware that some patients are having difficulty accessing methotrexate in the wake of the Supreme Court’s ruling on Dobbs v. Jackson Women’s Health Organization. Methotrexate is a common and extremely important therapy for Sjögren’s and many other rheumatic and inflammatory diseases.

The Foundation is committed to advocating for Sjögren’s patients and ensuring access to medications needed to manage their disease. We are monitoring the situation closely to understand the effects of this ruling and options moving forward. In the meantime, if you are having trouble accessing methotrexate to treat your Sjögren’s, please email to the American College of Rheumatology at advocacy@rheumatology.org to share your story.”  Janet E. Church, Sjögren’s Foundation President & CEO

This page is filled with printable brochures and resource sheets. You’ll find many wonderful ideas and resources here to help you navigate Sjogren’s Syndrome. Thank you for taking the time to learn more about this terrible condition.

@2022, copyright Lisa Ehrman

Disclaimer: I’m not a medical expert. This post contains my experiences and opinions and is not meant to be taken as medical advice. If you have a medical concern, please consult your personal physician.

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